Need some prayers

Hey everyone. Wanted to get you guys assistance for some prayers for my Erinn. I was waiting for a second opinion before I talked about this, and alas I've gotten it so here it goes. Erinn, my daughter for anyone that doesn't remember my Saturday shadow, has been diagnosed with an eye disease called keratoconus. She is loosing her vision and will eventually be considered legally blind. This usually takes 10 to 20 years to happen unless you have Down's Syndrome, and of course she has Down's Syndrome so it could be as rapidly as 3 years or less. This disease can be curtailed or slowed by hard contacts but her doctor doesn't think she is a good candidate for this so our only option is corneal transplants. Though I know this will happen, I'm not yet sure how long they will wait for this and how far they will allow her eyesight to go before they'll do the surgery. I am hoping to find this information out on her next visit later this month. It's is very difficult already to get Erinn to understand why she is having problems seeing now, so I'm afraid the worse she gets, the more confused she'll become. I'm remembering another time when she was much younger and had surgery to the muscles in her eyes and a cyst removed from her lid. As I waited for her to return to her room, I suddenly heard a very loud, crying voice coming from the hallway. It was of course Erinn, and she was constantly repeating "I see you...I see you". It took me a little while to figure out why she was saying this and then I realized that they'd covered her eyes for protection and the only way she could figure out to tell everyone she wanted the bandages off was to repeat the last part of a game she'd played peekaboo, I see you. She obviously was finished with the game and wanted someone to remove their hands. lol
Erinn is seventeen now, and I'm hoping she is understanding things better, but it breaks my heart to see her struggling to see. Well, I've spilled my guts here and I hope I haven't sounded dramatic, but I'm finding this a bit difficult. So, I'm asking you all to include Erinn in your prayers for her understanding, and me in your prayers that I don't loose my mind. Thanks all.